Development of a tool to guide referral of patients with neuromuscular disorders to allied health services. Part two.
until further notice
SourceDisability and Rehabilitation, 30, 11, (2008), pp. 863-870
Article / Letter to editor
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Primary and Community Care
Epidemiology, Biostatistics & HTA
Centre for Quality of Care Research
Disability and Rehabilitation
SubjectDCN 1: Perception and Action; DCN 2: Functional Neurogenomics; EBP 2: Effective Hospital Care; EBP 4: Quality of Care; NCEBP 10: Human Movement & Fatigue; NCEBP 2: Evaluation of complex medical interventions; NCEBP 6:Quality of nursing and allied health care; UMCN 3.1: Neuromuscular development and genetic disorders; UMCN 3.2 Cognitive Neurosciences; EBP 2: Effective Hospital Care; NCEBP 10: Human Movement & Fatigue
PURPOSE: The Perceived Limitations and Needs Questionnaire (PLAN-Q) was developed to guide referral for a one-off consultation by occupational therapy (OT), physical therapy (PT), and speech therapy (ST) consultation, to provide a tailor-made advice on allied health interventions. This article reports on the testing of validity and reliability of the PLAN-Q. METHODS: In the validation study, 208 patients with a broad spectrum of neuromuscular disorders completed the PLAN-Q, Medical Outcome Study short-form 36-item version (SF-36), and the Impact of Participation on Autonomy (IPA) questionnaires. A subsection of 51 patients, whose physical condition was stable, participated in the evaluation of the intra-rater reliability of the questionnaire. The theoretical construct was tested with factorial analysis, subscales were constructed and reliability and validity of the PLAN-Q subscales were assessed. RESULTS: Factorial analysis resulted in an 18-item self-report questionnaire. Items were grouped into four subscales ('physical capacity', 'transferring', 'oropharyngeal capacity', and 'hand-use'), each with two dimensions ('capacity' and 'need for help'). The internal consistency of all subscales was good (Cronbach's alpha: 0.77-0.94) as well as the intra-rater reliability of the subscales 'physical capacity' and 'transferring' in the 'capacity' dimension (Kappa: 0.70-0.75). The 'need' dimension showed poor intra-rater reliability suggesting that 'need for help' is a variable phenomenon that changes between two points of measurement. The construct validity of the subscales against the SF-36 and the IPA was satisfactory. CONCLUSION: The PLAN-Q is a valid self-report instrument that measures patients' perception of capacity and needs in domains relevant to referral for a one-off OT, PT, or ST consultation.
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