Parental experiences with early identification and initial care for their child with autism: Tailored improvement strategies
Number of pages
SourceJournal of Autism and Developmental Disorders, 52, 8, (2022), pp. 3473-3485
Article / Letter to editor
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SW OZ BSI OGG
SW OZ BSI OLO
PI Group Memory & Emotion
Journal of Autism and Developmental Disorders
Subject130 000 Cognitive Neurology & Memory; All institutes and research themes of the Radboud University Medical Center; Developmental Psychopathology; Learning and Plasticity; Radboudumc 7: Neurodevelopmental disorders DCMN: Donders Center for Medical Neuroscience
Whereas it is well documented how parents experience the diagnostic process of their child with autism spectrum disorder (ASD), less is known about parental experiences with the course of the early identification process and first steps in receiving care for their child with ASD symptoms. This mixed-method study investigated these experiences as well as barriers and improvement strategies regarding early detection in the Netherlands. A parental survey (N = 45) showed that, on average, initial concerns started at 22 months. A focus group (N = 10) revealed multiple barriers and proposed strategies of improvement in three domains: "Knowledge and Expertise", "Attention to Parental Needs" and "System and Organization". Strategies to improve early identification will be discussed based on parental perspectives and professional perspectives.
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