Experiences of Parents and General Practitioners with End-of-Life Care in Adolescents and Young Adults with Cancer
Publication year
2016Source
Journal of Adolescent and Young Adult Oncology, 5, 1, (2016), pp. 64-8ISSN
Publication type
Article / Letter to editor
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Organization
Medical Oncology
Primary and Community Care
Anesthesiology
Medical Psychology
Journal title
Journal of Adolescent and Young Adult Oncology
Volume
vol. 5
Issue
iss. 1
Page start
p. 64
Page end
p. 8
Subject
Radboudumc 17: Women's cancers RIHS: Radboud Institute for Health Sciences; Radboudumc 18: Healthcare improvement science RIHS: Radboud Institute for Health Sciences; Radboudumc 9: Rare cancers RIHS: Radboud Institute for Health SciencesAbstract
This study aims to analyze the experiences of Dutch bereaved parents and general practitioners (GPs) with palliative care of AYAs (18-35 years) in the terminal stage. Fifteen parents and nine GPs involved with nine deceased AYAs filled out questionnaires and were interviewed by telephone, respectively. In general, the parents were satisfied with the emotional care they themselves received and the medical care that their child received. The GPs were very satisfied with the cooperation with the palliative team. Gaps are present in the areas of symptom control, communication between hospital professionals and parents, aftercare, and transition between hospital and GP.
This item appears in the following Collection(s)
- Academic publications [238430]
- Faculty of Medical Sciences [90359]
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