Parents' experiences, needs, and preferences in pediatric diabetes care: Suggestions for improvement of care and the possible role of the Internet. A qualitative study
until further notice
SourceJournal for Specialists in Pediatric Nursing, 20, 3, (2015), pp. 218-229
Article / Letter to editor
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Paediatrics - OUD tm 2017
Journal for Specialists in Pediatric Nursing
SubjectRadboudumc 16: Vascular damage RIMLS: Radboud Institute for Molecular Life Sciences; Radboudumc 6: Metabolic Disorders RIHS: Radboud Institute for Health Sciences
PURPOSE: To investigate the needs and preferences of parents of children with type 1 diabetes (T1D) concerning pediatric diabetes care and use of Internet in care. DESIGN AND METHODS: Parents of 34 children, aged 2-12, with T1D participated in seven focus group interviews. RESULTS: Analysis revealed provision of tailored care, disease information, peer support, and accessibility of healthcare professionals as major needs in parents. Internet could be used to satisfy these needs. PRACTICAL IMPLICATIONS: According to parents, diabetes teams should focus on the impact of the disease, parents' experience, and the child's development, and provide online professional and peer support.
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