Publication year
2015Source
European Journal of Pediatric Surgery, 25, 6, (2015), pp. 481-487ISSN
Publication type
Article / Letter to editor

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Organization
Health Evidence
Surgery
Journal title
European Journal of Pediatric Surgery
Volume
vol. 25
Issue
iss. 6
Page start
p. 481
Page end
p. 487
Subject
Radboudumc 10: Reconstructive and regenerative medicine RIHS: Radboud Institute for Health Sciences; Radboudumc 10: Reconstructive and regenerative medicine RIMLS: Radboud Institute for Molecular Life SciencesAbstract
Anorectal malformations (ARM) have a low prevalence, patients need specialized surgical care, and in many cases, patients born with ARM even need life-long aftercare. Due to its low prevalence most patients are still treated in low-volume pediatric surgical centers without any adequate monitoring of the outcome. Data on prevalence, comparison of different surgical techniques, and prospective outcome measurements are still scarce and difficult to interpret. In 2010, a consortium was founded (ARM-Net consortium) including several European pediatric surgical centers to collaborate more in research and share knowledge on ARM. One of the structures started by the consortium was an ARM-Net registry for the inclusion of all future patients treated in these centers. With this review, we report the structure of the ARM-Net registry, some of the results, and discuss the challenges we faced and still face after its introduction in 2010.
This item appears in the following Collection(s)
- Academic publications [202786]
- Faculty of Medical Sciences [80017]
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